Today was okay I guess. We went to the library in “Woodbridge”, where ever that is, and checked out an insane amount of books, movies, and a probably 20+ CD’s of jazz mostly! I am currently adding them to my growing library as we speak! I lost quite a few songs when I transfered them to our external hard drive (I probably clicked no versus yes or something incredibly annoying and basic like that). Today was also blood draw day (oh my favorite!!), but honestly, I’m kinda used to the whole sticking-sharp-objects-into-my-arm-to-draw-out-my-life-sustaining-blood thing. I only have to have blood drawn every two weeks, so I am actually lucky. I still feel like I’m going to black out and such other wondrous things, and still envision myself attacking the needle-baring nurse (but of course its just an idle fantasy! I’ve never attacked anyone medical!).
March 2009 archive
I changed my own dressing yesterday on my PICC line and I am proud as punch about it! I was told by *cough* people that I could not change it one handed, which obviously made me all that much more determined to do so. Mom helped a little, I conceed, by holding things (mainly the line itself so it wouldn’t fall out or be pulled out- an important task, not gonna lie) and taping some things but apart from that it was all me. Took a while but it was ‘fun’, sorta. After people basically helping me with everything because of how much Lyme has taken from me, its nice to do something for myself, and something hard at that! Almost makes up for not walking, but that was a big almost.
A few days ago, we went to Hyde Park, New York -home of the CIA (Culinary Institute of America) and FDR’s library and home, and near Vassar! – to go to a *gasp* doctor! Yah, that totally took you by surprise! Bet you didn’t see that one coming *rolls eyes*. We saw my other Lyme doctor, Dr. Horowitz’s PA, Lauren and then Dr. Horowitz came in with Dr. Hecht a visiting naturopath from Maine or New Hampshire. The PA can do everything a doctor does-prescribe, examine, discuss, blahblah- but they are underneath the doctor, and the liability is all his. So pretty much a sweet deal! She was nice but we seemed to talk for such a long time and I was so sleepy! We waited an hour and forty-five minutes on top of that to actually see the PA! Crazy! They put me on ANOTHER drug which should help me, or make me sicker and then help me. I don’t really know. We drove there and back in one day…it’s only two hours each way but still! I’m real tired now. Gotta go.
Well it has been quite a sweet day today, all in all. HA! OMG so not! Today majorly sucked, and was not fun! Everything medically bad seems to be happening this week, and Mark and Mary (my other auntie and uncle!) are visiting, which sucks way more because I can’t really do much with them because I feel really bad. I’m so glad they are here though.
People we met at Doctor Jones’ office, Steffan and Sharla, came for dinner tonight. It was really fun, cause they are real chill people and Steff is sick too, so he understands about the whole ‘Lyme thing’. I feel so shitty today because of the sleep study last night/morning, which obviously wasn’t like the best time I’ve ever had *rolls eyes*. Steff listens to righteous music, and we did our IV’s together, which is what cool people do for fun. Ha!! It’s hard to imagine getting to know someone when you can’t remember the past minute, let alone their name, but they were so nice and kept introducing themselves again and again, which made me feel like less of a fricken looser!
WEll, last night/morning, those with a medical degree and very poor listening skills, decided that it would be a genius and helpful thing to get me to do a sleep study. I have numerous reasons why this plan is flawed (oh! I feel like a debater! Colleen’s rubbing off on me! Now I’m gonna present a logical argument that will KICK ass (and logic too probably).
Yesterday was the best day of my life. Seriously! Claire – from GNS and Victoria who’s in grade 12 and I’ve known for ages (she’s like a music guru too) – was visiting universities on the East coast and dropped in for an evening! It was so totally awesome to see some one familiar and just hang out. Claire played me a few of her songs and we talked and at dinner (we had yummn, which was so normal that it makes me so sad and miss home more. She brought some choir music and stuff from home, which is totally awesome!! I super tired, but Claire, if you read this at some time, I love you, and know that you coming meant so much to me, and I totally can’t wait to get back!!
It snowed two days ago, and it’s already melting. It makes it seem warmer and brighter outside, and very fresh. We had about 6 inches when it first fell, but now there is like (okay and this is a really rough guess, cause like I suck at guess-measuring!) 2 or 3 inches. It’s pretty, but makes it kinda hard to get around with the wheelchair, another unforeseen snow complication. My list of reasons not to like snow (you East Coasters know!) is growing!